After my recent conference my guest speaker and friend, over from the UK, stayed on for a tour of Delhi, Jaipur and Agra. He has Usher Syndrome which means, in his case, tunnel vision as well as being Deaf. For someone with this condition it can be pretty tough getting around. Imagine then visiting India: a place with few pavements, mentalist driving, little awareness of disabilities and a general level of what feels like chaos. There were incidents right from when he arrived at the airport all the way through to when he left.
To start with, we arrived at a hotel round the corner from my house where my guest would stay. I am not allowed male overnight visitors at my flat and this has been written into the tenancy agreement. My landlord is part of a lovely but rather conservative India family who live on the ground floor. The hotel staff looked perplexed to see their new guest arrive. As the two of us chatted in Sign Language they stared. The staff asked many questions and were horrified when he explained that they cannot knock on his door as he will not hear. They didn’t get it at first but then started to realise the implications of his being there and panicked. As I walked back to my pad at 4am, I wondered how this was all going to work out.
Over that week the staring I usually get went to a whole new level. A white woman, using Sign Language and guiding a man around when pavements are bumpy i.e. most of the time, attracts a lot of attention. We had a few near misses with motorbikes and a few occasional collisions with Rickshaw wallahs, a few stumbling off kerbs and autos trying to drive off whilst my friend was attempting to get in. There were some funny moments and some that were pretty stressful.
The Indian ASLI conference went very well. In India the Deafblind community are not so well integrated into the Deaf community so I had to show a few people how to communicate with our honourable guest. Once people had seen hands-on signing or were told about tunnel vision, they just got on with it. Having my guest at the conference proved to be an awareness raising exercise. In fact that is how the whole trip turned out.
With the conference over we headed by coach to Jaipur. It was impossible avoiding touts whilst being a communication guide. I shouted ‘Jao!’ (go away) more times than I have had to so far. When we got to the hotel however, the receptionist started signing away. Turns out he had a Deaf friend. Bingo. A bit later on one receptionist said my guest couldn’t go out alone until we put him straight. Later that evening he successfully went out on his own in the company of a Rickshaw-wallah. Being forewarned about gem scams in Jaipur, he returned safe.
Whilst visiting the City Palace, my guest had his first haggling experience. Later a Deaf man approached us as he worked in the shop and had seen us signing. If you’re Deaf you meet other Deaf people all over the world. It’s a known phenomenon. Some people had no patience but then you can get this wherever you go and whoever you are. Many more though watched our interactions then would try to make gestures so they could communicate directly. Some helped with the job of guiding once they knew how.
We travelled onto Agra to see the Red Fort, Agra town and the infamous Taj Mahal. A place famous for touts and con artists, I knew it wouldn’t be easy. I was lucky to find an auto driver to stay with us for the whole day saving us the hassle of negotiating a price each time. He was very patient and helped out whenever he could. A conman got my guest into the Taj for free as he wanted to take half our entrance fee afterwards. We went in for the cost of my ticket alone and left him outside penniless. There was more being bumped into by passers-by, more stares and logistical nightmares. When you have the beauty of the Taj in front of you though, nothing else is important.
After a late trip on the train back to Delhi we had a day of tourist fun there before my guest went home. Straight to the Red Fort where my guest got another free entry. I declined to go shopping at Janpath. The security guard looked horrified when I said it was just him going in. I told him I would happily accompany my guest if I got in free. This was declined so off I went much to the consternation of the guard.
Later we headed to Old Delhi. My guest got followed, grabbed and no amount of Jao-ing got rid of one man so we ducked into a street food place for a samosa and a lassi. Once replenished I negotiated a rickshaw so we could be cycled around the chaotic streets. When we got out our Rickshaw wallah tried to rip us off and wouldn’t give me my change. We were suddenly surrounded by ten young men who fought with him to return the cash. We ended up getting our ride for half the price I had negotiated and one man told us to leave as the argument continued. I whispered my thank yous and got my friend out of there with relief and gratitude at the kindness of strangers.
Many disabled people here are stuck at home, isolated or just not visible in public. Society here rarely sees positive role models as India has far to come in accessibility, understanding and awarding people their rights. One man told him that he was amazed as my friend was far better off than many here such as the many illiterate and destitute living in poverty. I think my guest, in his short time here, gave many people food for thought and did more than he knows for raising awareness of how it should be in India.
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